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Philanthropy in Perth Photos Bohdan Warchomij October 22, 2018

Posted by bohdan.warchomij in : Metaphor Online , trackback

Leo Sayer dances with Telethon children Kaide Stratton and Charlotte Meredith

Incoming Telethon chairman Richard Goyder has promised to keep building the fundraising beast that has again triggered a philanthropic emotional response from  generous West Australians. It also attracted people like Lady Kitty Spencer, Leo Sayer, Anna Coquerel from Home and Away, Sam Frost, David Koch, Magicians Adam and Selina Murby and many others who contributed to the energy and drive that inspires the people of West Australia to invest in medical research.

Lady Kitty Spencer Photo Bohdan Warchomij

Selina and Adam Murby Photo Bohdan Warchomij

Raising the roof Photo Bohdan Warchomij

The two children who graced the stage at the Perth Convention Centre and inspired us all were 10 year old Kaide Stratton who was diagnosed with mucopolysaccahridosis) and 6 year old Charlotte Meredith who was born with Congenital Heart Disease, diagnosed with Pulmonary Atresia with a hypoplastic right ventricle.

Kaide Stratton and Charlotte Meredith Photo Bohdan Warchomij

At just eight days old was the first time Charlotte was handed over to the cardiology surgical team for her first of several heart operations. At 10 months of age Charlotte returned to Princess Margaret Hospital for her second surgery and her first open heart surgery. Another surgery at 1 and ½ and in November 2016 at almost 5 years old had the completion of her Fontan.

Kaide was diagnosed with MPS IVA (or Morquio syndrome), probably the least severe of the spectrums. Morquio syndrome is a genetic condition where parents are carriers but show no signs. It’s a degenerative and progressive condition with no known cure and very rare impacting 1 in 250,000 births.

 Mr Goyder said a key initial driver for Telethon’s contribution to WA’s health sector under his watch would be a tribute to the benefactor he has replaced, Seven West Media chairman Kerry Stokes.
 Mr Goyder said a key initial driver for Telethon’s contribution to WA’s health sector under his watch would be a tribute to the benefactor he has replaced, Seven West Media chairman Kerry Stokes.
Mr Goyder said The Kerry M. Stokes Chair of Child Health — established by Curtin University, the Channel 7 Telethon Trust and the Telethon Kids Institute — would be a world-class research program for the benefit of children and the adults they would become.

Sam Frost Photo Bohdan Warchomij

Anna Coquerel Photo Bohdan Warchomij

Photo Bohdan Warchomij

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